1. MENTAL HEALTH CRISIS RESOURCES

 

2. SUGGESTIONS FOR SELF-CARE DURING THE COVID-19 PANDEMIC

  • Washing your hands, wearing a mask when you are in public areas, and practicing social distancing are great practical ways to take care of your physical health during this time.   

  • Remember, it is also important to take care of your mental health!

  • Be kind to yourself, and to those around you.

  • Permit yourself and others to be human and imperfect.

  • Limit your social media and COVID-19 coverage intake.

  • Allow yourself a fixed amount of time (< one hour) to worry then move on.

  • Allow your children a fixed amount of time (< two hours) to play video games, then try a new activity.

  • Stick to (or create) healthy lifestyle habits:  Daily exercise, nutritious meals, consistent bedtime and wake-up hours.

  • Create and stick to a daily routine for yourself and your family.

  • Reach out to and nurture your support networks.

  • Focus on controlling the things that you can and letting go of those things that you cannot control.  Know the difference!

  • Develop a toolkit for self-care:  fun activities, relaxing activities, stress-relieving activities etc.

  • Find time to laugh about something at least once a day.

 

3. TELEHEALTH SERVICES for youth and adults with Tic Disorders

 

1) The Long Island Center for Tourette and Northwell Health

  • Telehealth services including new consultations and ongoing care are being provided as appropriate through the Long Island Center for Tourette and throughout the Northwell Health System. 

  • For further information call: Ms. Florentina Lazaroaie, Patient Navigator

 

Phone:   (516) 365-0587                 Fax: (516) 365-1909

Email:      info@litourettecenter.org

https://www.litourettecenter.org

 

2) Mount Sinai Hospital

  • Therapy and Medication Management

  • Clinical Research Trials

Phone (212) 241-2135

https://www.mountsinai.org/care/behavioral-health/services/ocd-tics/tourette-coe

 

3) Weill-Cornell Medicine

  • Call 646-962-2820 for information about telehealth services

 

4) University of Rochester Medical Center

Telehealth services are being provided where appropriate throughout the URMC system. Please contact the relevant office below for information and appointments:

 

  • Department of Neurology - Pediatric Neurology (for children < 18 years old). 

Phone: (585) 275-2808                   (585) 275-3683

https://www.urmc.rochester.edu/neurology/our-divisions/child-neurology.aspx

 

  • Department of Neurology - Movement Disorders (adults)

Phone: (585) 341-7500                   (585) 341-7510

https://www.urmc.rochester.edu/neurology/our-divisions/movement-disorders-unit.aspx

 

  • URMC Pediatric Behavioral Health & Wellness: Child & Adolescent Outpatient Services

Phone: (585) 279-7800

https://www.urmc.rochester.edu/childrens-hospital/behavioral-health-wellness/outpatient.aspx

 

  • URMC Mental Health & Wellness: Adult Outpatient Services

Call: (585) 273-5050

https://www.urmc.rochester.edu/mental-health-wellness/adult-services/outpatient/general-outpatient-services.aspx

 

4. ONLINE SUPPORT & RESOURCES

 

Weill-Cornell Medicine: Pediatric OCD, Anxiety, and Tic Disorders Program (POCAT)

“Parenting Strategies for Challenging Times Webinar Series”

  • Navigate to this site to access free, previously recorded webinars and learn about upcoming webinars: 

https://psychiatry.weill.cornell.edu/pocat

 

New York Presbyterian Youth Anxiety Center

“Building Resilience in Challenging Times”

General Resources for Families – Parents and Children

Golisano Children’s Hospital at Strong (Rochester, NY) offers the following landing-page with links to various resources for families:

  

International OCD Foundation (IOCDF)

Some individuals with Tic Disorders may have co-occurring obsessive-compulsive symptoms. The IOCDF has established a variety of resources including weekly town halls and online support resources, and tips for how to “Listen to the CDC, not the OCD”

Centers for Disease and Prevention (CDC):

 

Office of Mental Health: 

 

Pandemic Resources: 

 

Talking to Children about Coronavirus (COVID-19):

 

NAMI: COVID-19 (Coronavirus) Information and Resources: 

 

Northwell: Talking to Kids About Coronavirus: 

 

Child Mind Institute: 

 

The Clay Center for Young Healthy Minds: 

 

National Center for PTSD:  

 

American Psychological Association COVID-19 Resources

 

5. EDUCATIONAL SUPPORT / RESOURCES

 

1) ONLINE LEARNING

 

  • Wide Open School  - “Schools are closed. Minds are wide open”

A free collection of online learning experiences for students of all ages, grades, and needs.

https://wideopenschool.org/

 

  • The Child & Family Institute

Our team of academic tutors, coaches, and educational consultants offer customized virtual learning sessions, home schooling and homework help, and executive functioning assistance. 

For enquiries, send email to: info@childfamilyinstitute.com

 

  • Various Learning Resources:

10 Best You Tube Educational Channels for Kids:
https://www.learningliftoff.com/the-best-educational-youtu…/

 

  • Free audio books for kids:

https://www.learningliftoff.com/free-audio-books-for-kids/

 

  • Scholastic Learn at Home:

https://classroommagazines.scholastic.com/…/learnathome.htm…

 

  • Helping You and Your Family Deal with Covid-19:

https://geraldguild.com/blog/#/article/3630

  • At Home with Special Needs Children:

https://parentnetworkwny.org/the-other-coronavirus-front-l…/

 

  • 150 Ideas for Sensory Home Learning

https://inclusiveteach.com/…/20/150-sensory-learning-ideas/…

 

  • Some worksheet activities on Google Drive & DropBox:

Google Drive: https://drive.google.com/…/1MaM2RBrqyDeyKFCG8impDgfuZ8…/view

Drop Box: https://www.dropbox.com/s/o8p218ps2yxugo7/Blank%20316.pdf

                How I’m feeling

                All About Me

                Living Through History

                Coronavirus Time Capsule

2) FUN STUFF

 

Virtual National Parks

https://artsandculture.withgoogle.com/en-us/

 

Story Time from Space

Astronauts read stories, from space!

www.storytimefromspace.com

 

Virtual Field Trips

Here is a an article that lists 20 virtual field trips you can take around the globe!

https://adventuresinfamilyhood.com/20-virtual-field-trips-to-take-with-your-kids.html?fbclid=IwAR3frHS5OBqTNlCUkpqqQ7Gp9NqsYiOx-B4n6kZtEXgppd9M3P5O3xze--E

“I Spy” Mystery Tour

On a nice day when the kids really need to get out of the house:  Pile the kids in the car for an “I Spy” mystery tour. As you drive, each time you come to a stop sign or a traffic light, have the kids take turns deciding which way you go – left, right or straight ahead. Once the decision is made, I Spy begins. You name an object that they are all searching for. The list is endless; a red house, a cow, a horse, pink flowers, a tree swing, etc., etc., etc. The person who finds the object you are looking for, receives a point. The person with the most points at the end of the tour receives a prize. It doesn’t have to be monetary – pick what to eat for dinner, pick the family movie to watch that evening, pick a family game to play, bedtime a half hour later than usual, etc. Use your imagination.

Museum of Modern Art (MoMA)

Offering five free, online art classes:

Sign up through www.coursera.org

 

Metropolitan Opera Free Streams of Live Performance Archives

https://www.metopera.org/user-information/nightly-met-opera-streams/

Road Trip From Home: VIRTUAL FIELD TRIPS curated by Carly Hallman

* suggested by our fans Erin and Ally Woods

3) ADVOCACY

IDEA and ADA in the time of COVID-19 by Susan Conners, M.ED., President, TAA of Greater NY State

 

Tip from Dr. Helene Walisever, PhD (Co-Chair of the NY Hudson Valley Chapter of the Tourette Association of America, and TAA Education Advisory Board Member)

Dr. Walisever provides the following tips:

  • Families can contact their child’s school in writing to request Special Education Services that their child may not be currently receiving virtually. If the school is unable to meet the child’s needs, parents may consider writing a “10-day notice letter” of their intent to obtain private education services for their child, if school is unable to meet the child’s needs.  Information about this type of letter, and the process for preparing one are available at various sites, including:

a) https://www.parentcenterhub.org/private/

b) https://www.understood.org/en/school-learning/choosing-starting-school/finding-right-school/unilateral-placement-moving-from-public-to-private-school

  • If there are any work samples that parents think will document either regression or lack of progress they should save those and set those aside as well. This documentation may help in future, if requesting compensatory or additional services from the district to make up for the lost instruction time, IEP services, etc.  Parents can also log the time spent in tutoring their child, particularly for special education services that are typically provided to the child by the school district.

 

Council of Parent Attorneys and Advocates, Inc. (COPAA)

COPAA has many resources for parents of students with special education needs during this time, including guidance to families on how to proceed when the school district does not continue special education services at this time.

 

Parent Training and Information Centers

PTICs serve residents through the country, to support children and youth with disabilities, families, professionals, and other organizations that support them.  Educational advocacy is a large part of the PTIC mission.  To find the PTIC for your area in NY State, navigate to this website and scroll down to find the listings for NY State:

https://www.parentcenterhub.org/find-your-center/

 

Wrightslaw

From the Wrightslaw website, “Our goal is to provide individuals with the knowledge and skills to advocate effectively for children with disabilities”

https://www.wrightslaw.com/

 

4) STATE AND FEDERAL EDUCATION DEPARTMENTS

New York State Education Department:

Guidance for P-12 Schools, including many memos and resources, including for students with special needs

http://www.nysed.gov/coronavirus/guidance-p-12-schools

 

Guidance on Continuity of Learning

http://www.nysed.gov/edtech/guidance-continuity-learning

 

NY State Board of Regents is providing live-stream video for its monthly meetings and has archived the past meetings.

https://www.regents.nysed.gov/meetings

 

State Education Department Guidance on Graduation and Course Requirement Changes due to COVID-19 and Ongoing Statewide School Closure (April 7, 2020)

http://www.nysed.gov/news/2020/state-education-department-issues-guidance-graduation-and-course-requirement-changes-due

 

US Department of Education: Questions and Answers on Providing Services to Children with Disabilities During the Coronavirus Disease 2019 Outbreak (March 2020: https://www2.ed.gov/policy/speced/guid/idea/memosdcltrs/qa-covid-19-03-12-2020.pdf

 
 

6. FREE/LOW FEE ONLINE COURSES

Coursera

Penn State

  • [Added: April 18 – Expires: April 30] 55 Free Online Courses: Includes courses about wildlife, farming practices, and business. Requires simple sign-up.

Udemy

  • [Added: April 8] 700+ Free Online Courses: Includes courses in tech, leadership, and language. Requires simple sign-up.

JetBrains

  • [Added: April 18] 150+ Hours of Free Courses: Includes tracks for learning Java, Kotlin, Python, and web development. Requires simple sign-up. Although not related to the pandemic, the platform happens to temporarily be in free early access.

XYZ Coding

  • [Added: April 19] 1-Month Free Trial: Includes courses to become a full-stack developer by learning about front-end, databases, Python, and Django. A subscription normally costs $10 per month. Requires signing up with credit card, so don’t forget to cancel in time.

App Brewery

  • [Added: April 18 – Expires: July 8] 10+ Hours Free App Development Course: Covers app development in Flutter using the Dart programming language. The course normally costs $12. Requires simple sign-up.

Rosetta Stone

  • [Added: April 10] 3 Months of Free Language Learning: Includes languages such as English, Spanish, and French. A subscription normally costs $12 per month. Requires simple sign-up.

Moz Academy

  • Includes courses exploring all aspects of search engine optimization. These normally cost $50 to $200 each. Requires simple sign-up.

HomeSchoolPiano

  • [Added: April 11 – Expires: August 31] 10+ Hours of Free Piano Lessons: Includes access to video lessons about piano fundamentals as well as live practice sessions. A subscription normally costs $17 per month. Requires simple sign-up.

© 2017 by Long Island Center for Tourette

Tel.: 516-365-0587

Fax: 516-365-1909

1615 Northern Blvd, Suite #306, Manhasset, NY 11030

                        info@litourettecenter.org